Stories shape how we see the world, and a growing number of authors with Down syndrome are using their voices to share theirs. There are lots of great educational, inspiring, and heartwarming Down syndrome books out there, but what about ones by authors who really understand what it’s like to live with Down syndrome?
These writers are athletes, actors, activists, and artists. They’re people with diverse stories that are definitely worthy of a place on your bookshelf!
We’ve shared our favorite books by authors with disabilities, but it’s time to shine a spotlight on some fresh voices! When it comes to books about Down syndrome, authors with real, lived experiences have the opportunity to share personal, candid accounts that can shed light on this condition for others.
There are many authors with Down syndrome who have inspiring and important stories to share with the world. Here are some of our favorites!
[Source]
Jason Kingsley and Mitchell Levitz are two self-advocates who co-authored this memoir in their late teens and early twenties. Count Us In offers readers an intimate and empowering glimpse into growing up with Down syndrome.
The book is a candid, conversational dialogue between the two about their lives, touching on topics like school, work, love, marriage, money, and politics. Through these conversations, readers get to know the two authors as resilient, kind, and intelligent individuals.
[Source]
More Alike Than Different is a moving and inspiring memoir from David Egan, a trailblazer born with Down syndrome. He has built a remarkable life of self-advocacy, public policy leadership, and global inclusion efforts.
His memoir chronicles his growing up in a loving, supportive family, excelling in school and sports, and even competing in the Special Olympics. Throughout his life, he learned early to challenge stereotypes and speak up for himself. David shows us that inclusion isn’t simply ideal—it’s essential.
[Source]
A Life Worth Living is a powerful memoir from Tommy Jessop, an actor, activist, and changemaker who’s transformed the representation of Down syndrome on screen, stage, and in law.
He broke barriers as the first actor with Down syndrome to star in a primetime BBC drama, “Coming Down the Mountain” (2007), became a full voting member of BAFTA, and received an Honorary Doctor of Arts from the University of Winchester.
Known for his charisma and drive, Jessop has won multiple Best Actor awards in short films and has advocated for the Down Syndrome Act in the UK Parliament. With candidness and charm, Tommy invites readers to see a life beyond labels.
[Source]
This inspiring, heartfelt memoir by Sean Adams is a celebration of identity, family, and the everyday moments that bring him joy. Through personal stories and reflections, Sean shares what it’s like to grow up with Down syndrome, how he learned to advocate for himself, and why he views his life not as a limitation, but as a gift.
Sean talks about the deep bond he shares with his family, his experiences as a Special Olympics athlete, and the pride he feels in helping others understand what it means to live with a disability.
The authors featured here remind us that having Down syndrome doesn’t limit creativity, insight, or power when it comes to moving others through words. At NeuroNav, we believe in celebrating individuality, self-advocacy, and inspiring independence, and we’re here to share resources that empower others.
We want to help you find your voice with our independent facilitation services. If you live in California, you may be eligible for the Self-Determination Program (SDP). This program allows individuals and their families to enjoy more freedom and choice in the disability services they receive. Get the support you need to start living your best life.
