Self-determination can be an empowering and life-changing philosophy for people with disabilities. Unfortunately, many potential barriers to self-determination can prevent people with disabilities from making choices about their lives. Here’s what you need to know about self-determination challenges you or a loved one might be struggling with and what you can do to help.
What is Self-Determination?
Everybody has the right to a happy and fulfilling life. Self-determination principles outline a set of core beliefs that empower people with disabilities to make choices for and about themselves.
These choices include—but are not limited to—preferred social activities, hobbies, employment opportunities, and any support services they may need to achieve their goals. This powerful idea puts important decision-making power into the hands of those it affects the most.
5 Common Barriers to Self-Determination
Self-determination for adults with disabilities is easy to define, but it can be hard to put these ideas into action. Any number of obstacles can prevent someone from taking action or making their voice heard when living with a disability.
Here are some common barriers to independence and some tips for navigating them.
1. Lack of Autonomy
One of the most common hurdles for adults with disabilities to face is a lack of decision-making power in their daily lives. When someone relies on others for things like transportation, scheduling, and personal care, they may feel unable to make meaningful, impactful choices about their lives.
People with disabilities deserve the space and freedom to communicate their needs in a way that’s comfortable for them. Caretakers, family members, and friends can support autonomy by creating a safe, supportive environment where everyone feels free to express themselves.
2. Self-Doubt
Everyone deals with it at one point or another. Confronting negative feelings about ourselves can be difficult. Focus on your strengths by setting realistic personal goals and celebrating every step toward achieving them.
By focusing on our successes and remaining open to possibilities, we build confidence and challenge the negative self-talk that can hold us back.
3. Overprotection
Because individuals with disabilities often have caretakers or companions who help them with daily tasks, they may face resistance when trying to make choices for themselves. Even if this resistance comes from a place of care and concern, it can limit a person’s autonomy and prevent them from achieving their full potential.
When you care for someone, it can be tempting to take responsibility and take action on their behalf. It’s important for caretakers and loved ones to recognize when they are robbing someone of a chance to make choices for themselves. Rather than anticipating their needs, it’s helpful to ask questions and show curiosity, even in little things.
4. Separation from Others
It’s not uncommon for people with disabilities to feel alienated or isolated due to their circumstances.
A lack of social interaction can make it hard to find support when they need it. Building a wider support system is a great way to find new opportunities and meet new people who can help you make strides towards greater independence.
Making new friends, joining support groups, and getting involved in your community can help build self-confidence and expand your horizons.
5. Lack of Self-Advocacy
Self-advocacy is an important skill for everyone, especially adults with disabilities. In a world built for non-disabled and neurotypical people, it can be easy for their wants and needs to go unnoticed. Developing the skills to advocate for yourself can help you get the support, respect, and resources you need to meet your goals.
Take the time to get to know yourself and what you want. You won’t always have all the answers, but figuring out what you need to be happy, healthy, and fulfilled is the first step to getting it.
Practice self-advocacy skills in daily life by communicating your feelings with those around you. Let others know your preferences, correct them if they make a wrong assumption about you, or ask for help when you need it. When it comes to self-advocacy, even a little bit can go a long way.
Discover More Self-Determination Resources
Continuous learning and personal growth are what life is all about.
NeuroNav provides information, resources, and support for those living with disabilities in the hope that we can empower them and their families to get the most out of life. Discover more advice for navigating life with a disability on our Self-Determination Blog.
If you live in California, the Self-Determination Program (SDP) can help you make decisions about the support services you receive. NeuroNav’s independent facilitation services are here to help you make the decisions that matter most.
Whether you are already enrolled or looking to get started, schedule a consultation today to make your self-determination goals a reality.
